Session Schedule

Find a specific presentation in the session by navigating to the timestamp indicated below.

0:00:00
Introduction

0:02:02
Work productivity in patients with central disorders of hypersomnolence
Yuichi Inoue (Japan)

0:18:20
Brain fog in central disorders of hypersomnolence
Anne Marie Morse (United States)

0:36:53
The role of social outcomes from patient perspective
Stephanie Manuli (United States)

0:51:56
Influence of psychiatric co-morbidity on social and neurocognitive outcomes in central disorders of hypersomnolence
Anna Heidbreder (Austria)

1:05:25
Cognitive impairment in central disorders of hypersomnolence and ways to treat it
Yaroslav Winter (Germany)

1:18:00
Question and answer

Summary

In addition to improvement of excessive daytime sleepiness in central disorders of hypersomnolence, such as narcolepsy and idiopathic hypersomnia, it is important to consider their social and neuropsychological outcomes. Patients with these diseases often experience challenges at work and in their social life. Neurocognitive impairment beyond the symptoms of excessive daytime sleepiness should be considered and addressed in therapeutical strategies aimed to improve disease course and to improve quality of life. In our symposium, we will present current data on social and neuropsychological outcomes in central disorders of hypersomnolence from different parts of the world (Asia, Western and Eastern Europe, North America) and discuss innovative approaches to improve these outcomes. We also integrated patient perspective is our symposium in order to provide a comprehensive understanding of the topic for the audience.
The first speaker, Yuichi Inoue from Tokyo Medical University, Japan, will present his recent data on social functioning and work productivity in patients with central disorders of hypersomnolence. He recently published on this topic in Journal of Epidemiology in 2024 and also submitted new data for publication this year.
Anne Marie Morse, director of pediatric sleep medicine at Gesinger Medical Center, will focus on brain fog in patients with narcolepsy and idiopathic hypersomnia, which is a clinical manifestation of these diseases that goes beyond excessive sleepiness and is a manifestation of neurocognitive impairment. Her talk is aimed at both adult and pediatric patients and we refer to her recent publication on this topic.
The patient perspective in the context of social outcomes will be presented by Stephanie Manuli, MPH, a public health professional, sleep advocate, and person living with narcolepsy type 2. With a background in sleep epidemiology and a decade of advocacy experience, Stephanie engages in public speaking and community efforts to reduce stigma and promote patient inclusion in research and policy. In her talk, she will discuss the daily impact of these conditions and the importance of peer support and self-advocacy in improving quality of life.
The new investigator, Ms Haykuhi Hovakimyan from Sleep and Movement Disorders Center, National Institute of Health of Armenia, will present the latest data from her project on the influence of psychiatric co-morbidity on social and neurocognitive outcomes in central disorders of hypersomnolence.
Finally, Yaroslav Winter, who is head of the Comprehensive Epilepsy and Sleep Medicine Center at the University of Mainz in Germany, will focus on further aspects of neurocognitive deficits in central hyersomnolence disorders, such as reduced attention, memory difficulties, and will also present innovative data on treatment strategies for neurocognitive impairments in these disorders, which are the current topic of his research.
Active interaction with the audience and mutual discussion of the topics presented are integrated during the symposium.